Here we go… our first post!
We both love fundraising and we have a number of charities close to our hearts; and recently we were asked by one of Kelly’ friends to take part in a fundraising challenge for a very courageous young man called Harrison.
Harrison has a condition called Duchenne Muscular Dystrophy (DMD). It’s the most common fatal genetic disorder to affect children around the world. If you’ve got it, you can’t produce dystrophin, a protein you need to build up your muscles. As a result, every muscle in the body deteriorates. At the moment there is no cure.
The facts about DMD are inescapable:
- DMD is 100% fatal
- Most kids with it die in their late teens or early twenties
- Most boys with it are usually in a wheelchair by the age of 12
- It leads to respiratory failure, heart failure, and other debilitating orthopaedic complications
One in 3,500 boys is born with it, and in the UK 1,500 kids has it at the moment. You can have it, no matter where you are or what your ethnic background is. A third of all cases start in the womb, with no warning before the baby is born.
There has not been a huge amount of research into DMD so Harrisons parents have set up a charity in honour of their son called Harrisons Fund (check out the website www.harrisonsfund.com).
The challenge we are taking part in is the 3 Peaks Challenge in June so we will be climbing the three highest mountains in the UK within 24 hours; Ben Nevis (Scotland), Scarfell Pike (England) and Snowdon (Wales). We are both fairly fit and have been advised that the climbing shouldnt be a problem, but the lack of sleep and total exhaustion is the tough bit. Let the training commense!
If you would like to donate to our challenge, please visit our fundraising page, alternatively if you have any advice please post us a comment.